Saturday, February 23, 2013

hospitality


                 The hospital. It’s so serious. Everyone there has the same blank smile, the one they hope masks their concern. Nobody says hello in the elevator and the mellow green walls designed to be calming, are not. You look at the ground when walking the halls because you don’t want to intrude on anyone’s privacy….or you’re afraid of what you’ll see.

                I’ve spent a lot of time in hospitals. I was six the first time. I had been sick for days; couldn’t really breathe. My mother rubbed Vicks Vapor rub on my chest and propped me up on a mountain of pillows to help me breathe. I coughed incessantly, a dry, tight cough that took all the energy out of me. It was dark out when my mother bundled me up for the drive to the hospital. We sat in the waiting room in hard plastic chairs lined up next to the windows. There were toys in the corner of the room and a pile of picture books but nobody was playing with them.

                Luckily, we didn’t have to wait long. I was so weak and cold but my mother insisted I take my jacket off; I just wanted to feel better. A doctor I didn’t know walked in the room with a bright smile on his face. Him and my mother spoke about me as if I wasn’t sitting in the room but I didn’t have the energy to explain how I was feeling myself. The doctor listened to me breathe, moving his stethoscope around on my back. His smile was gone and a slight frown was in its place. He told my mother he waas concerned about my high fever and the rattling her heard in my chest and would like to get some chest x rays.

                More waiting. For what, I didn’t know. I couldn’t rest. The bed’s lumpy mattress was uncomfortable and it was too high off the ground. I ached.  The lights were bright and too many people were walking by the room talking in hushed voices that weren’t quiet enough.

                Minutes, or hours, or minutes that felt like hours, went by before two men in blue scrubs arrived to take me to my x ray. Symbiotically, they locked the bars on each side of me and wheeled me out of the room. We winded down the corridors and I watched the dark green border whiz by me. The ride is the only thing I remember about my first x ray.

                I was admitted to the hospital with pneumonia. It was the first time I heard the word. I was allergic to the penicillin I was prescribed, complicating my recovery. But I did recover and went home with two inhalers and a new bracelet.

                When you spend a lot of time in hospitals you develop a liking for people-watching and you learn a lot about relationships. You see sick wives downplaying their pain to ease the worries of their husband. You wonder why, when life is at stake and everything is exposed, people are more dishonest than ever.

                In 1992 my grandmother was diagnosed with breast cancer. I was young, only seven and I wasn’t given many details about her illness. She was hospitalized often and I grew accustomed to seeing her in a hospital bed. I was too young to realize the severity of the situation, probably because of my grandmother’s impressive acting chops. Yes, she looked sick. She had tubes hooked up to her arms with clear liquid running through them and her eyes were sagging, her skin sallow. She had lost her hair. But she always smiled for me.  She stayed awake while I read to her and chattered about school. I laid with her in bed and we watched Days of Our Lives, her favorite soap opera. If she was scared, she never showed it. If she was angry, I didn’t know. Each week I painted her nails.

                When she had a double mastectomy she joked about it and showed off her new “ta ta’s.” Her good humor didn’t last long before she landed back in the hospital. This time it was lung cancer.

                Shocked. Another adjective that describes most people in hospitals. Whether you’re a patient or a visitor, you’re probably thinking “Why? How could this happen to me/someone I know? It’s not fair.” It’s never fair but people say it anyways, as if fairness ever factored into the bad genes or bad decisions that led the person to their hospital bed. As if saying it changes anything.

                My grandmother smoked for two years when she was twenty, before she got pregnant with my mother. She told me she gave it up easily, that she never really liked it anyways. Two years.

                She didn’t bounce back as quickly the second time. Her stays at the hospital were longer; she was home less. During the week my mother got out of work at five and we would get in the car and drive to Bangor to visit her in the hospital. We would say hi to the nurses congregated at the main desk. We didn’t need directions to her room and her doctor became a friend whom we all loved. He celebrated with us when she went into remission.

                Our happiness was short-lived, our enthusiasm premature. The dark winter was over and spring leaves covered the trees; flowers bloomed. My grandmother's spring allergies turned into a cold. Her immune system,weak from chemotherapy and radiation, was ravaged by the seemingly minor cold and it quickly escalated to pneumonia.  

                You always think you know what to worry about. You’re scared when somebody tells you they have cancer but shrug it off as a minor concern when someone gets admitted to the hospital for the flu. Most people think appendicitis is no big deal but what they don’t know is that your whole life can change in a day and it’s the things you least expect that will crush you.

                She was admitted to the ICU. Nurses and doctors in the ICU are the most empathetic of all hospital employees. They don’t bother with forced smiles. Instead, their eyes shine with pity and concern. Here, they don’t bother with lies. They don’t sugarcoat situations and they don’t bend the rules.

                I wasn’t allowed to visit her. I was underage. It killed me knowing that I could make her feel better. I wanted to tell her I knew it was going to be okay. I had had pneumonia only three years before and was completely fine.

                That was the last time we went to the hospital to see my grandmother. I was nine.

                I lost faith in medicine. Didn’t understand how someone could beat two forms of cancer and die from a simple virus like pneumonia. The only answer I had was that doctors didn’t know anything.

                Yet, I couldn’t avoid them. My asthma hadn’t gone away and the next winter I became a patient at the lovely Eastern Maine Medical Center when I developed pneumonia. I was petrified, too young to understand the factors that led to my grandmother’s death. I didn’t know about white blood cells and the immune system. I thought I was going to die.

                Every time I got sick there on out I was convinced it was a chronic illness. My knees ached and I was convinced I was arthritic. When I found bruises on my body I knew it was leukemia. Rashes were the worst for me.  A symptom of virtually everything, I would spend nights awake obsessing over what the rash (bug bite) meant. During my yearly physicals I would show my doctor freckles on my body that I had deemed cancerous only to find out they were just freckles.

                Since I knew I was being irrational, I spent a lot of time outside of the doctor’s office, convincing myself nothing was wrong with me. As a result, I avoided the doctor when I should have gone.

                I woke up early on a summer day in 2006, my stomach burning. I couldn’t stand up and cried out; it hurt so bad, I couldn’t help it. I spent the morning keeled over in the bathroom unable to move, the sharp pain stabbing my right side. I tried to drink water, do anything to make me feel better, but nothing worked. I laid back down in the fetal position, willing the pain to go away. Finally, at seven p.m. I couldn’t take it anymore. Terrified, I had my roommate drive me to the hospital where I waited three hours to be seen.

                This time I went into the examining room alone and as I chugged the fluorescent yellow liquid to prepare for my CT scan, I realized how lonely the place full of people really was. As I lay in the capsule, still as I could be, I prayed they would find something wrong with me. I needed an answer to the pain.

                I was preparing for surgery, the valium dripping into my veins. Quick. The surgery had to happen right away. This was pretty serious. So serious I had called my parents; they were in the waiting room. The nurse administering my drugs had a soothing voice and I wasn’t nervous anymore. Maybe it was the drugs or just relief to have the answer I had prayed for.

                My stay was short and sweet. I came out of surgery on schedule and my appendectomy was successfully. They sent me home with a prescription for vicoden and instructions to rest for at least a week.

                The hospital saves lives.  A scary place, you can justify avoiding it almost every single time. Not enough money, no insurance, the pain's not that bad. It’s probably nothing, let’s just wait it out. You’ve done it, I’ve done it. I almost did but something made me go. Fear, our most primitive symptom; it keeps us alive.

Thursday, February 21, 2013

numbers


                 Arms behind my back I sucked in, trying to zip the last inch of the strapless cocktail dress. It was the dress I had been looking for; it was perfect. Winter white, its subtle lace details shimmered and the short hem made me look three inches taller. It was the last one and I had to make it fit. I turned to view the back in the mirror and admired the graceful way it fell above my knees. Elated I finally found the one I bought the dress and on my way home stopped at Hannaford to stock up on spinach, veggies, and coconut water.

                The Christmas party was a week away. Seven days to lose the five pounds that prevented the dress from zipping. Five pounds that would drop me from a healthy size four to a hungry size two. Five pounds that would grant me a generous “Samantha, you look nice.” instead of the usual, “Honey, you’re looking a little heavy in the stomach/butt/thigh/face….” from my mother.

                Numbers have directed me since middle school. In sixth grade, we started algebra and it took me months to figure out how to find x. I realized there was a thirty dollar difference between my Kmart jeans and everyone else’s from American Eagle. I measured my food and counted my calories to maintain a size zero figure. These numbers, simple and straightforward, complicated everything.  Dark and ugly, the numbers on the scale were the definition of everything I wanted to change.

                My alarm went off, its obnoxious ringing impossible to ignore. It was barely light out and the snow was coming down heavily. The weatherman had predicted four to six inches by noon. There was nothing more I wanted than to close my eyes and stay in bed until I had to go to work but I saw the white dress hanging in my closet.

                Half an hour later I was on the elliptical machine at the gym, watching my incline climb from four to five. I had been on it for six minutes and burned twenty seven calories. I had twenty four minutes to go before I could get off and six more days to fit into my dress. I wasn’t going to let one inch of stubborn zipper and my mother’s insult-laced compliments ruin my Christmas. When my time ran out I chose the extreme fat burning course and I settled in for another half an hour of hell.

                With every movement my legs burned and I wondered why I was even doing this. I watched myself in the mirror on the wall and I looked fine. I was thin. Nobody could call me fat, not even me. Yet I was driven by numbers. I let my pants size define me. I deprived myself holiday cookies and cupcakes to fit into a dress I would wear for four hours. The 116 flashing up at me on the scale made my stomach turn. It would be different if I was at the gym for the first time in months because I was motivated to be healthy and fit but….I was there out of pure vanity.

                I still had seventeen minutes to go on my second course when I slapped the stop button with my shaking hand. My legs felt like rubber when I stepped off the machine and I remembered why I had been meaning to cancel my membership.

                For the next five days I set my alarm at seven for an early morning workout but never got out of bed. I ate the muddy buddies my co-worker made and a piece of cheesecake. The night of the party, I wore my hair down to cover the imperfect inch in bouncy curls. I felt like a princess and when my mother looked me up and down and said “Honey….you’re looking a little heavy. How much do you weigh now?” I smiled sweetly and lied. “I don’t know, Mother. I threw out my scale.”

 

               

               

               

               

 

               

Sunday, February 10, 2013

a new order


                 Erin and I trudged up the hill, sweating. It was early October but it felt like summer and we soaked up the afternoon sun.  We were later than usual but we weren’t in a hurry to get home where we would have to explain the reason why we were so late. I was dreading the inevitable interrogation of my mother who would never understand that I didn’t deserve to get detention. I couldn’t wait to be grounded from the phone for another month. “Isn’t it weird that your Mom is having a baby?” Erin asked.

                “No, not really,” I said, smiling to hide my guilt. At twelve, I knew it was selfish of me to dislike my unborn brother. I knew I should be happy for my mother, that I should be excited to be a big sister. Part of me was. I loved that sweet smell only babies have, their smooth skin. I knew he’d be cute and laughing babies always made me crack up.  Still, at twelve, I saw his arrival as an invasion of privacy. Our apartment was tiny, barely large enough for all live members of my family. There was no extra bedroom and the new bundle of joy was booting me out of mine. My new residence was the large hallway we used as an office between the living room and kitchen.  It had a tiny closet and retro orange tiles covered the floor in a hideous geometric design. Curtains were put up as doors and I knew I wouldn’t be able to block out the baby’s constant wailing. As someone who highly valued their beauty sleep, this was catastrophic.

                He was born on June 30th in the same hospital as me. Eight weeks early, he was a tiny 4 pounds 7 ounces and his lungs were underdeveloped. He didn’t cry; he wasn’t strong enough, and the only way he could breathe was through tiny tubes. His name was Harley Michael, a true homage to his father.

                Mike was a biker. It was his vice, his joy. Mild-tempered and quiet, he lived to ride his Harley Davidson. Every summer night Mike and my mother took a ride, travelling east to Belfast or down Route 1A to Bar Harbor. In the winter they went to Bike Week in Daytona, riding their cobalt blue bike all the way down the east coast. He had a good job as a member of the parts department at Darlings Honda Nissan. It was uninspired work and while he was apathetic towards his day-to-day life, he was an adventurous and happy peson. A carefree lifestyle had allowed him many years of irresponsibility and at thirty-six Mike was ready to be a father for the first time. He had been ecstatic when my mother found out she was pregnant, proud when he found out they were having a boy. Now he was worried and sad, praying to a God I never knew he believed in.

                I prayed right next to him, silently taking back every negative thought I’d had about my brother. I bartered with God, promising to be the best sister I could be if Harley was okay. It was rough. Very early, he had a violent allergic reaction to breast milk. He was also allergic to soy milk; the only thing his sensitive body would accept was rice milk. He gained weight slowly and eventually he could breathe on his own. One and a half months after his birth, Harley came home.

                He took over my room. The walls were bare and the closet was filled with puke rags and diapers. Tiny shoes and socks barely big enough to cover my pinkie sat on the shelves and a white crib was against the wall where my bed used to be. My bookshelf was gone and its place was a shiny white changing table. There was a rocking chair in the corner and each day my mother spent hours sitting in it, cradling him in her arms as she tried to get him to sleep.  He cried all the time, hardly slept at all. It was colic, the doctor said. It was supposed to go away after a while. The striped curtains hanging in my doorways did nothing to block out his screaming and I slept with headphones on, a pillow over my head.

                I didn’t sleep through a single night for months. None of us did. We took advantage of the hours Harley silently slept only to be woken up by his desperate screams.  Most nights my mother, irritable and exhausted, was unable to coax him back to sleep. Eventually, Mike would gently take Harley from her arms and send her back to bed, doing everything he could to calm his son.  On particularly bad nights, he’d pack up the diaper bag and go for a ride, just so everybody else could get some sleep. Sometimes I sang him songs under my breath as we paced across the living room.  I bounced him up and down in my arms for hours, lulling him to sleep. The second I stopped moving he would wake up and I quickly learned which floorboards creaked as I walked in circles in the dimly lit living room, enjoying the silence.

                Eventually, Harley slept through the night and his ear piercing screams became angry murmurings only he could understand. Settled in his crib, baby monitor on, my whole family could sleep again and a new order was restored. Each night, before I retreated to my makeshift bedroom, I would wander into his room and place my hand on his tiny back, touch his silky skin. I missed our time together, those long nights hanging out in the living room.